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Data Sources

OPCRD's data collection capabilities are highly versatile and customizable, thanks to its ability to access a wide range of sources. This empowers OPCRD to cater to bespoke data requirements with ease, making it the go-to research database for researchers.
This includes:

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Electronic Medical Records (EMR)

The unique nature of the UK’s NHS allows the life-long health record of a UK citizen to be held by one practice. OPCRD provides a comprehensive picture of over 24 million anonymous patient data including:

  • Demographic information

  • Diagnoses

  • Symptoms

  • Treatments and prescriptions issued

  • Test results and measurements and results taken in the practice

  • Referrals

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Patient Questionnaire Data

OPC questionnaires are a compilation of validated clinically relevant questions covering symptoms, disease control, triggers, side effects, quality of life, and adherence measures. The questionnaires can be distributed to patients from their GP practice as part of OPC clinical review services. OPCRD currently holds questionnaire data in respiratory (adult asthma, child asthma and COPD) covering 66,000 patients:

  • Symptoms

  • Smoking status

  • Allergies

  • Adherence

  • Patient preferences/beliefs/concerns

  • Side effects

  • Quality of life

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Secondary Care Data

OPCRD primary care data can be linked to secondary care and other data sets. This linkage enables OPCRD to provide a fuller picture of the patient care record to support vital public health research, informing advances in patient safety and delivery of care.

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National Registries

Linking routine electronic medical record (EMR) data with clinical registry data provides a more complete picture of the patient journey through episodes of care. OPCRD EMR data can be linked to existing and new registries, some active examples include:

  • International Severe Asthma Registry (ISAR)

  • International Helping Asthma in Real-life Patients (iHARP)

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Implementation Programmes

Following a new strategy or intervention being introduced into GP practices, OPC can use prospectively collected EMR data as captured within routine clinical practice to assess outcomes. This provides reduced operational demands, patient burden and costs as compared to classical randomised controlled trials (RCT’s). Furthermore, by keeping data collection protocols to routine care, the trials are more reflective of the real world.

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